Share Your Views on Long Covid

A series of four public listening events will take place in February and March 2022 on the subjects of Myalgia Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) and Long Covid, with a view to creating ME/CFS and Long Covid services within Manx Care.

These upcoming sessions will serve as a basis for developing a shared understanding of what is required from such a service.

Manx Care has said it is aiming to create a space where it can learn from people who live with these conditions, understanding what has helped or hindered them in the past. These lived experiences will guide and shape the developments of the service, helping Manx Care to consider what needs to be available across the community to help people live well with such conditions.

These events will be facilitated by an independent, impartial member of the Isle of Man Government Learning & Development (LEAD) Team, with Manx Care clinicians (who are already involved with treating people with ME, CFS or Long Covid) in attendance to listen and help on the day.

The two different workshops will be held Wednesday 9 February 2022 between 4pm-6pm on the subject of Long Covid with the second on ME/CFS between 1pm-3pm on Thursday 10 February. Both workshops will be held at the Best Western Palace Hotel and Casino on Douglas Promenade. Step free access to the venue is available at the rear of the hotel

Those living with ME/CFS or Long Covid are encouraged to complete this questionnaire  prior to the sessions taking place, to ensure the voices of those with experience of these conditions are heard. Manx Care are also welcoming individuals to present their experiences in writing if they prefer. As the workshops are during the day any interested individuals can also email sarah.morton@gov.im to have their views/opinions listened to. 

Members of the public are also welcome to attend the Listening Events, either in person or via Zoom should register with sarah.morton@gov.im

Further sessions in March will take place at Comis Hotel on Tuesday 29 between 1pm-3pm on Long Covid or Wednesday 30 between 4-6pm on ME/CFS. Again Manx Care are requesting the public to register their interview via Sarah Morton at sarah.morton@gov.im

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